Spinal Muscle Atrophy

Jesy Nelson, Spinal Muscular Atrophy

Jesy Nelson Reveals Twins' Rare Diagnosis—What Parents Need To Know About Spinal Muscular Atrophy

British singer Jesy Nelson recently took to Instagram to share a devastating update about her 8-month-old twin daughters.

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Wes Streeting supports Jesy Nelson’s call for improved spinal muscular atrophy screenings

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Spinal Muscular Atrophy: Symptoms to life expectancy after Jesy Nelson's heartbreaking news

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Jesy Nelson ‘right to challenge’ twins’ diagnosis process, says Streeting

The Health Secretary has said Jesy Nelson was “right” to challenge the screening process for spinal muscular atrophy (SMA) after her twins were diagnosed with the rare genetic condition.

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Jesy Nelson will 'shout from the rooftops' about baby muscle disease campaign

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Jesy Nelson shares update from hospital as she reveals she is fighting for SMA1 screening at birth after her twins' diagnosis because early treatment helps to prevent severe muscular disease

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Jesy Nelson Says She Noticed “Signs” Before Her Twins’ SMA Diagnosis

“I actually saw all of the signs before I knew what SMA was,” Jesy, 34, said during her Jan. 6 appearance on UK's This Morning.

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Jesy Nelson shares first warning signs she noticed that her babies may never walk

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Watch: Jesy Nelson breaks down over 'frustrating' reality of twin babies' life-changing SMA diagnosis

Wes Streeting praises Mirror campaign demanding baby test after Jesy Nelson heartbreak

The Health Secretary has sent a heartfelt message to Jesy Nelson and the Mirror for shining a light on a rare and devastating condition that can affect newborn babies

The Independent on MSN

What is spinal muscular atrophy?

Spinal muscular atrophy explained after Jesy Nelson reveals her twins’ diagnosis - The singer shared an emotional update about her twins’ health on Sunday and that ‘time is of the essence with this di

'I was completely ignored' over baby's rare spinal condition

Lucian Neale was diagnosed with Spinal Muscular Atrophy (SMA) at six weeks old despite showing symptoms in his mother's womb. His mother Samantha Williams, from Crumlin near Pontypool, said she was "completely ignored" and told she was "an over-protective mum".

Medical Xpress

What you should know about spinal muscular atrophy

Spinal muscular atrophy (SMA) is a genetic neuromuscular disease affecting specialized nerve cells that control voluntary muscle movement, according to the Muscular Dystrophy Association (MDA). It can lead to severe physical disability, paralysis and life ...