28K views · 337 reactions | Hazel has a very unique story. #childhooddementia #medicallycomplex #medicallyfragile #MCAHS1 #pign #cdg #pigncdg #hypotonia #epilepsy #rarecondition #rare #geneticcondition #HOPE4Hazel #firstinAZ #neuro #brainatrophy #mcahss1 #raredisease | Hazel Mae - Medical Journey | Facebook

16K views · 187 reactions | Thing Hazel does instead of sleeping! #medicallycomplex #medicallyfragile #MCAHS1 #pign #cdg #pigncdg #hypotonia #epilepsy #rarecondition #rare #geneticdisorders #geneticmutation #HOPE4Hazel #strong #1of22 #firstinarizona #firstinAZ #genetic #genes #syndrome #myoclonic #neuro #brainatrophy #mcahss1 #fighter #medicallycomplex #lowtone #oneofakind #mutation #raredisease #sleep | Hazel Mae - Medical Journey | Facebook

Aside from epilepsy, one of Hazels biggest struggles is her hypotonia. She has a harder time building muscle and using her muscles because it’s more difficult to. Since she is very limber due to the hypotonia we need to be extra cautious of injuries from hyperextending and more. Hypotonia was one of the main things we noticed in Hazel before learning her condition. #hypotonia #limber #hypotoniaawareness #flexible #childhooddementia #medicallycomplex #medicallyfragile #MCAHS1 #pign #cdg #pigncdg

212 reactions · 18 shares | The IWT 2020 Topocalma Infernal is going...

18K views · 396 reactions | Bon pour Noël c’est pas vraiment noël L'infernal Trail des Vosges panne d’énergie au 60 eme . Il en reste encore 140 à parcourir… | Patrick Montel | Facebook